Over the last two days we have found out very little. We do know that Karter will be having Surgery before she can come home unless some sort of miracle happens. She is on such a high flow of oxygen right now in which we can not provide her with at home. The surgeon (who reminds me of a mad scientist) came in yesterday and stated he was going to start tinkering with different mixes of her oxygen and flow level before making his final call. He DOES NOT want to do the shunt but instead wants to do the whole repair. Karter is continuing to have these Tet spells while she is sleeping even though she is on oxygen. The Mad Scientist (The Cardiac Surgeon Dr. Forbes) seems to think that she may have some type of sleep apnea. That is why he is tinkering with her oxygen before he makes his decision on when he will do the repair. He believes that something in her air way may be relaxing too much when she sleeps causing stress to her heart in turn causing the spells. He has put her on what they call a mixer which takes the oxygen and the flow level, which they measure in liters, and makes a unique combination based on her needs. She has been on a low amount of oxygen but on a high flow for most of the weekend. The high flow should have kept the air way open while she was sleeping allowing her to not spell in her sleep; however, she is still continuing to spell. In fact she had another two spells this evening. She recovered from each of these spells in a timely manner but they are still concerning the doctors.
In other words they have no idea what is causing these spells. Until they get in there and get her heart repaired they will not be able to determine if she does have some type of sleep apnea. We were suppose to see the surgeon today to see what his thoughts were on about when he would do the operation but he got caught up in another surgery. Hopefully we will see him in the morning and get some answers. The great news is Karter is finally gaining weight! SHE WEIGHS 8.9 LBS!!! She is still on supplement with my breast milk but it is working and doing its job! She is getting all of the extra calories that she needs in order to grow which is AWESOME as Addison Grace would say!
We were hoping that we would get an estimate on a surgery date today but it did not happen. From what the nurse said he is pretty booked for this coming week so it possibly could be next week before he can schedule Karter into the rotation. So it looks like Karter and I have a new home for the next few weeks. We have officially moved and and put our clothes away in the cabinet and dressers in the room. I am so lucky to have such a wonderful family who always makes sure that I have someone with me at all times during my stay. Jeremy's mom Terri has been here since last Saturday!!! My mom is coming in tomorrow to relief her for the week so that she can go to a much needed work conference. We had several visitors this weekend that were such a sight for sore eyes! Last weekend Carol, Dustin, Philana, Trista, and Derreck made it! I just love having visitors! It is nice to interact with the outside world every now and then!
This weekend Addison and Jeremy came up! I really do miss being home with her for she is growing up so much and changing constantly. Her vocabulary is AMAZING! In fact it is so good she already knows how to say D*M* IT very appropriately....a bad habit we will defiantly be breaking!! Haha! It is still pretty funny to hear her say it though I just have to remember to be strong and get on to her without laughing which sometimes is very hard! :) We did get out for a little bit this weekend and took Addison to see Toy Story 3 which she loved! If you have not seen it you need to go!
Below you will find some pictures from this weekend! Please enjoy and remember to keep Karter in your prayers! She is such a blessing to us and I hope that she will be a light in your life as well!
Love,
The McHams'
Nana feeding Karter!
Pa and Nana checking on Miss Priss...She looks very intrigued in her conversation with Pa!
Addison with her Frog purse! She was showing me everything!
Karter on the cell phone...
Papaw Cato looking over our sleeping Angel
Memaw talking to a very comfortable girl!
Cousin Marsha & Cousin Bonnie talking to a happy baby girl!
Addison giving Karter a kiss! Too sweet!
Karter finally finding her hand! Cousin Marsha gave her the cute bow!
Paw and Karter Bear!
Karters head wrap after having her hair washed!
Cute Cute Cute pics!!!! I love that pic of Addison with her purse (so gorgeous) and of Karter with her zebra print bow!!!! Thank you so much for taking the time out to update the blog!!! Karter has such an awesome family and support system!!!! We love you guys and continue to pray for all of you!!!
ReplyDeleteGreat pics! Not sure if you remember me posting on here before but in case ya don't I am Keeley's mom and her brother Jacob was born with tetrology of falot in June 98. He had his first surgery to place a blalock shunt at almost 9 weeks and a full repair at almost 10 mos. They had wanted him to get bigger or hit a yr but his heart had other plans. Please know I will continue to lift Karter up in prayer. As well and you and daddy..cause I have walked those shoes and it is so hard I know to see ur baby laying there and there is nothing you can do. I love the pic of Addison with her FROG purse as I saw where ForeverRelyOnGod associated with F.R.O.G. HUGS AND PRAYERS from a tet mom to another...:-)
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