We were released yesterday afternoon! We are now at home being monitored by our pediatrician for weight gain and for signs of issues with her heart. We go back to Dallas in a month for a check on her heart and hopefully we will be able to postpone surgery until this fall when she is larger and older. We will have to have surgery to repair her AV canal and her PVA valve which is too small. This surgery could keep us at the hospital in Dallas for 2-4 weeks depending on her rate of recovery. We will continue to pray that we can postpone this surgery until she is older and better able to handle it.
We are so thankful to have her here back in Tyler! We love being home and being back to "normal" (or as normal as normal can be right now). As ironic and crazy as this sounds I do miss her machines that gave us her vital readings and her heart readings. I believe that we became accustom to them and now being without them makes our nerves a little on edge. If I was not up peaking over her bassinet then Jeremy was up looking over our angel. I can not even tell you how many times I laid my hand on her precious little chest just to make sure she was still breathing. I hope eventually that our nerves settle down and I pray that we are able to put this fully in God's hands and trust that he is in control. I know that we need to but knowing and doing are two different things.
We will post some pictures and videos of her being home in the next few days. We continue to ask for your support and prayers!
Love,
The McHams
Friday, April 23, 2010
Sunday, April 18, 2010
Day Ten- A little light at the end of the tunnel!
We are getting closer and closer to coming home!!! I am excited yet a little scared....being at home means that we will not have the heart monitor or the oxygen monitor hooked up at all times letting us know that she is ok. I know that she has to come out of her bubble at some point in time but I am afraid that I have become all too comfortable with the monitors by her side. Karter will be receiving another echo on her heart tomorrow to see if it has closed up completely, if it has then we will be able to start the process of getting ready to prepare for the house. The doctor thinks we could be home as early as Friday depending on her echo. If the PDA valve is not closed then we will still be waiting for it to close.
Yesterday we also were informed that Karter's bone marrow is producing some abnormal cells. The doctor insured us that the production of these cells was not an immediate cause for concern because she is producing them at a low rate. It is something that we will have to have monitored by an oncologist and an hematologist over the next few years. It is something that will more than likely clear itself up, and it is usually found in Down's babies. In RARE cases it can lead to certain kinds of childhood leukemia. The shock of hearing that it could lead to leukemia was somewhat overwhelming but Jeremy and I are putting this in the Lord's hands. We are defiantly learning to take things day by day.
Karter also is having a little trouble eating enough to gain weight. She weighed 5 lbs 8 oz at the beginning of this journey and on Monday was 6 lbs 3 oz; however, on Tuesday she was only 6 lbs 1 oz. The doctors would like to see her progress at a better rate as far as her weight is concerned. Therefore they are now supplementing my breast milk with some formula to pack it full of calories. This is intended for her to be able to get more calories for every ounce of milk she eats. Right now she is only eating at most about 1 ounce every 3 hours. They would like her to be eating at least 2 ounces every 3 hours. I know that she will get there! She is such a fighter and I know that she is trying her best to eat as much as she can!
Jeremy and Addison did leave Children's this past Tuesday afternoon so I have been here holding down the fort with Jeremy's mother and mine taking turns sitting with me. I am beginning to go a little stir crazy! I do miss my afternoon walks with Addison around our neighborhood but I am very grateful that the Lord has blessed us with the opportunity to be here at Children's with Karter. At least we can see a light at the end of the tunnel for this stay. I know there are still many more times that we will have to be here at Children's but I am glad to see that we could be going home any day now! I will post more information on or arrival home and the results of her echo as soon as I know anything!
Love,
The McHams
Yesterday we also were informed that Karter's bone marrow is producing some abnormal cells. The doctor insured us that the production of these cells was not an immediate cause for concern because she is producing them at a low rate. It is something that we will have to have monitored by an oncologist and an hematologist over the next few years. It is something that will more than likely clear itself up, and it is usually found in Down's babies. In RARE cases it can lead to certain kinds of childhood leukemia. The shock of hearing that it could lead to leukemia was somewhat overwhelming but Jeremy and I are putting this in the Lord's hands. We are defiantly learning to take things day by day.
Karter also is having a little trouble eating enough to gain weight. She weighed 5 lbs 8 oz at the beginning of this journey and on Monday was 6 lbs 3 oz; however, on Tuesday she was only 6 lbs 1 oz. The doctors would like to see her progress at a better rate as far as her weight is concerned. Therefore they are now supplementing my breast milk with some formula to pack it full of calories. This is intended for her to be able to get more calories for every ounce of milk she eats. Right now she is only eating at most about 1 ounce every 3 hours. They would like her to be eating at least 2 ounces every 3 hours. I know that she will get there! She is such a fighter and I know that she is trying her best to eat as much as she can!
Jeremy and Addison did leave Children's this past Tuesday afternoon so I have been here holding down the fort with Jeremy's mother and mine taking turns sitting with me. I am beginning to go a little stir crazy! I do miss my afternoon walks with Addison around our neighborhood but I am very grateful that the Lord has blessed us with the opportunity to be here at Children's with Karter. At least we can see a light at the end of the tunnel for this stay. I know there are still many more times that we will have to be here at Children's but I am glad to see that we could be going home any day now! I will post more information on or arrival home and the results of her echo as soon as I know anything!
Love,
The McHams
A Big Thank you!
Thank you to the staff and the students at Hawkins ISD! The goodie basket was incredible! Addison loved her box of treats and the snacks were just what we needed! The cards that the students made us were very thoughtful and sweet! Thank you to the staff at Gym Tyler, your goodie basket was also a delight to receive! The chocolate was surly put to use! :) Also a huge thank you to the Winona Youth Baseball league and to Vicki! The cash really will help us with gas and other monetary needs for Karter's stay here at Children's Hospital! We would also like to thank our family and friends who have donated their time, ears, prayers, and money....you are all wonderful! Jeremy and I could not have done this without all of you!
We would also like to thank the staff at Children's Hospital! They are all incredible angel's who have done more for us than we could ever thank them for in this lifetime!
Last but not least we would also like to thank the Ronald McDonald Foundation for providing us with meals and a place to stay! The staff and volunteers are truly amazing!
THANK YOU TO EVERYONE FOR YOUR CONTINUOUS SUPPORT AND PRAYERS! PLEASE KEEP THE PRAYERS COMING, THEY HAVE ALREADY DONE WONDERS!
Love,
The McHams
We would also like to thank the staff at Children's Hospital! They are all incredible angel's who have done more for us than we could ever thank them for in this lifetime!
Last but not least we would also like to thank the Ronald McDonald Foundation for providing us with meals and a place to stay! The staff and volunteers are truly amazing!
THANK YOU TO EVERYONE FOR YOUR CONTINUOUS SUPPORT AND PRAYERS! PLEASE KEEP THE PRAYERS COMING, THEY HAVE ALREADY DONE WONDERS!
Love,
The McHams
Day Seven- Overload
Let me start off by saying Karter is still doing wonderful. She is the sweetest baby I think anyone could ever have the pleasure of meeting. She is absolutely beautiful inside and out! Sorry that we have not posted in the last two nights....we have had Addison with us this weekend and have been mighty busy! We took her to the aquarium yesterday and she loved it! She has been a breath of fresh air to have around here! I just love getting to hold and to play with her, I truly did miss her!
So we have been "patiently" waiting on Karter's PDA to close and today we became a step closer. It has closed enough for them to remove us from ICU and move us up to the eighth floor (RECOVERY FLOOR)! We will still be here a few days until it fully closes but that just means we are a step closer to coming home! We also learned today that Karter for sure has Down Syndrome. Knowing that she has Down Syndrome was not nearly as easy as I thought it would be emotionally for us. I know that we have known it in our hearts for the last few days but actually hearing the doctor tell us was a bit of an overload. This could be because when she told us she also explained a lot of the complications that Down Syndrome patients can have throughout their precious life. I don't know if it was the shock of all of the conditions that Karter could face or if it was just a build up of everything that happened this last week but today was the first day I finally broke down. Thank goodness for Jeremy, he was there to help me find my strength again (if even for just today) and to hold my hand and remind me that we should be thanking God for bestowing this precious gift upon us and that no matter what we just needed to take it day by day.
Ok so I am going to try and clear up Kater's condition for everyone...I think I have it right this time! Her PDA is a ligament/valve that closes as soon as an infant leaves the womb; however, Karter's was reopened until they could re-evaluate her heart condition. They opened it because it can provide more oxygen & blood flow from the heart. Her PVA is the pulmonary artery that leads to the heart and lungs. Karter's PVA is too narrow and not letting enough oxygen go to the heart and the lungs. This will be treated with surgery. The main issue Karter has is that her AV canal is not fully formed. The AV canal is responsible for separating the oxygen and carbon dioxide in the blood to route it to the appropriate chambers of the heart. This canal will also be treated with surgery and once treated will allow her to breath a little easier and keep her heart paced at an appropriate level. The AV canal is the interior wall of the four chambers of the heart. I hope that clears a few things up....it can all get confusing!
BRIGHT NOTE: Addison got to see Karter this afternoon since we were moved up the the eighth floor. She just adored her little sister. She is going to be a great big sister! She already loves her a lot, and I just know she will be Karter's protector! All she wanted to do was hold and lay beside her, it was too sweet!
Thank you all again for all of your prayer and support! We really appreciate everything you have all done and continue to do for our family. Please continue to pray for Karter's strength so that we may come home and prepare her better for surgery!
Love ya,
The McHams
So we have been "patiently" waiting on Karter's PDA to close and today we became a step closer. It has closed enough for them to remove us from ICU and move us up to the eighth floor (RECOVERY FLOOR)! We will still be here a few days until it fully closes but that just means we are a step closer to coming home! We also learned today that Karter for sure has Down Syndrome. Knowing that she has Down Syndrome was not nearly as easy as I thought it would be emotionally for us. I know that we have known it in our hearts for the last few days but actually hearing the doctor tell us was a bit of an overload. This could be because when she told us she also explained a lot of the complications that Down Syndrome patients can have throughout their precious life. I don't know if it was the shock of all of the conditions that Karter could face or if it was just a build up of everything that happened this last week but today was the first day I finally broke down. Thank goodness for Jeremy, he was there to help me find my strength again (if even for just today) and to hold my hand and remind me that we should be thanking God for bestowing this precious gift upon us and that no matter what we just needed to take it day by day.
Ok so I am going to try and clear up Kater's condition for everyone...I think I have it right this time! Her PDA is a ligament/valve that closes as soon as an infant leaves the womb; however, Karter's was reopened until they could re-evaluate her heart condition. They opened it because it can provide more oxygen & blood flow from the heart. Her PVA is the pulmonary artery that leads to the heart and lungs. Karter's PVA is too narrow and not letting enough oxygen go to the heart and the lungs. This will be treated with surgery. The main issue Karter has is that her AV canal is not fully formed. The AV canal is responsible for separating the oxygen and carbon dioxide in the blood to route it to the appropriate chambers of the heart. This canal will also be treated with surgery and once treated will allow her to breath a little easier and keep her heart paced at an appropriate level. The AV canal is the interior wall of the four chambers of the heart. I hope that clears a few things up....it can all get confusing!
BRIGHT NOTE: Addison got to see Karter this afternoon since we were moved up the the eighth floor. She just adored her little sister. She is going to be a great big sister! She already loves her a lot, and I just know she will be Karter's protector! All she wanted to do was hold and lay beside her, it was too sweet!
Thank you all again for all of your prayer and support! We really appreciate everything you have all done and continue to do for our family. Please continue to pray for Karter's strength so that we may come home and prepare her better for surgery!
Love ya,
The McHams
Thursday, April 15, 2010
Day Four- Full of Hope
Amazing is all I can say for today! Karter has exceeded the doctors expectations with everything. She is now feeding every three hours and is gradually being increased in the amount of milk she is given. We have not had to insert a feeding tube yet, thankfully! Her stats are still staying strong, and she was able to loose a few more wires and monitors today! The Lord is truly doing miracles with all of your prayers guiding his way.
Today we had some of our closest friends come up, Dustin & Philana. Man were they a sight for sore eyes! I never knew how much all of this would make us feel disconnected from the "outside" world. They were able to visit for most of the afternoon and even took us to dinner at an incredible pizza place. It was great to get away and eat dinner with friends and forget about all of the machine beeps that are constantly beeping in the room. Thank you guys again so much!!! Oh and Miss Karter thanks you for her elephant!
On another note, Addison is still doing good! She helped plant a garden this evening at Nana & Pa Dumas's house. I can not wait to see her face when those vegtables start to grow and she realizes what she help to create! She is coming up tomorrow and Jeremy & I can not wait to see that precious smile of hers or hear her voice! God sure has blessed Jeremy & I with an awesome family! Both of our girls are beautiful ladies that I know are going to do great things in this world! They have already made Jeremy & I very proud and have also made us stronger and better people.
Tomorrow Karter gets another echo cardiogram, so hopefully we will have some more great news! Please pray that her PAV is closing up like it should be doing at this time. Once again thank you all for everything you are doing and have done!
Our Prayer for the day....
O Lord, In this time of need, strengthen baby Karter. You are her strength and her shield; You are my refuge and strength, a very present help in trouble. I know, Father, that Your eyes go to and fro throughout the earth to strengthen those whose hearts long for You. The body grows weary, but my hope is in You to renew our strength. I do not fear, for You are with us. I am not dismayed or overwhelmed, for You are our God. I know You will strengthen us and help us; that You will uphold Karter with Your righteous hand. Even as the shadows of illness cover her, I feel the comfort of Your strength.
Amen
Wednesday, April 14, 2010
Day 3- Stepping Stone
Karter showed so much progress today!!! Yesterday we were all a little concerned because she was not staying awake during the day hardly at all; however, last night she became a little night owl and kept the nurses on their toes! Even though she stayed awake most of the night last night she did come around this afternoon and kept her precious eyes opened for a good amount of time! She also took her pacifier today without needing much assistance from us on keeping it in. The largest improvement she had today though was her appetite! She is now feeding from a bottle like a pro every two to three hours. She is only getting about 16 cc's per feeding but I am sure she will be moved up from that soon! The only issue they are having with bottle feeding her is that sometimes she starts to over work that bottle which causes her heart rate to drop, but if they pull the bottle back out for a few seconds it gees right back up! Hopefully she will continue to feed well and will not require a feeding tube! If she does have to get an 
feeding tube she will still get fed by the bottle the tube would just be for back-up me sure. All in all everything is going good, her stats and vital signs are good so all we can do now is wait and pray and hope that the PAV ligament to her valve closes.
feeding tube she will still get fed by the bottle the tube would just be for back-up me sure. All in all everything is going good, her stats and vital signs are good so all we can do now is wait and pray and hope that the PAV ligament to her valve closes. Karter was able to change rooms today too...she now has a cute little boy neighbor named Jagger. We are no longer in the isolated room of the cardiac intensive care unit but instead we are in a joined room of the unit. She was able to move because of all of her improvements; she is not longer considered high risk.
Thank you all again for all that you are doing and have done. There are a lot of people asking what they can do for Miss Karter and if she can have anything in her room. The answer to that is yes she can have stuffed animals but no flowers. They are allowed balloons but they have to be Mylar balloons and not latex. She is also allowed to have booties and her own blankets. Once again thank you! We will update with more tomorrow!
Tuesday, April 13, 2010
Day 2- Whirlwind of Emotions
Today has been a whirlwind of emotions...I think it is all starting to hit and the adrenaline that we have been running off of the last two days is finally starting to settle down. Karter is fighting hard, and has been one tough baby today. She is still off of her heart medication, which is great! The Pulmany Aurty valve (PAV) is starting to close like they wanted. We still have another few days of close observation though to make sure that the PAV closes all the way. The doctors did another echo cardiogram today to check the valve for any other irregularities and to make sure that it was starting to do it's job with out the medication. The results from the cardiogram came back with good results, the valve looks to be starting the process of closing and they did not see any other problems in her heart. As long as this valve closes in the next few days we should be able to avoid any surgery until she is a few months old. As far as knowing if she has down syndrome, we will not know for another week and a half or more. The test they do to test for this is a lengthy test due to the fact that they have to grow some more white blood cells from the few that they were able to pull out in a blood sample.
Karter was able to start losing some of the cords and machines that she was attached to today, such as her antibiotic line. They removed it because they think she is strong enough to fight off any infections! BIG NEWS: She was able to feed today, from a bottle. She did good at first with the nurse trying to get to feed her and was able to get down the first part of my breast milk. They then let me hold her and try to feed her, which she did OK she just did not want to eat much more than she already had. She took about an ounce total but they still feel that this is not enough. They are going to continue her on her iv and try feeding again tomorrow (Wednesday) because when they tried again later on she was just a little too weak to eat. If she is not able to feed from a bottle this morning then we are looking at a feeding tube which will go down her nose unto her belly. She will then keep the feeding tube until we make it up to the recovery unit.
Our main goal for Wednesday is to get Miss Karter to eat! I am very thankful that she is able to suck and swallow the milk now if we could just get her hungry! We are taking everything day by day and looks like we are at the point where all we can do is pray and wait and see.
Jeremy and I are still doing ok and hanging in there. It has been a roller coaster of emotions since she was born. Jeremy has defiantly been the strong one and has held it together for me when I just could not. The tears I cry are full of mixed emotions, I am excited and sad. Excited for all of the progress our baby girl has made but at the same time I have become torn by not being with Addison. Who knew that I would miss hearing Dora the Explorer in the background or the really stinky diapers? Thankfully she will be coming down for the weekend! Other things that have been hard are just not being able to go pick up Karter when I want to, while I am thankful that I at least get to hold her some it is just not the same. I never imagined not being able to hold my child or not being able to be with her for those precious first days. We still can not hold her hand or look at her toes because of all of the machines so all of that is tough. I did get to change her diaper today!!! I guess what I am trying to say is that I miss all of the little things that we do as mothers. My motherly instincts are there and it just kills me that I am not able to provide for her like I think I should be doing right now. On another note, Jeremy finally got to hold her today for a lengthy amount of time, I wish everyone could have seen the way he was beaming ear to ear! He is defiantly a proud daddy (as if you already did not know)! I just pray that I too can become as strong as he has been!
Well I think I have over done it for now...thank you for all of your support and prayers. Please keep the prayers coming because I know through prayer we can get Karter home! Our goal for the next week is to get to the recovery floor, floor 8! So please pray for floor 8!!! Also while in your prayers please also pray for all of Karter's new friends in the cardiac ICU! There are a lot of babies up there that still need prayer and healing. We have meet and will continue to meet some incredible people up here.
Thank you all!
P.S. We love you Miss Addison Grace, you are still our sweet angel too!
Karter was able to start losing some of the cords and machines that she was attached to today, such as her antibiotic line. They removed it because they think she is strong enough to fight off any infections! BIG NEWS: She was able to feed today, from a bottle. She did good at first with the nurse trying to get to feed her and was able to get down the first part of my breast milk. They then let me hold her and try to feed her, which she did OK she just did not want to eat much more than she already had. She took about an ounce total but they still feel that this is not enough. They are going to continue her on her iv and try feeding again tomorrow (Wednesday) because when they tried again later on she was just a little too weak to eat. If she is not able to feed from a bottle this morning then we are looking at a feeding tube which will go down her nose unto her belly. She will then keep the feeding tube until we make it up to the recovery unit.
Our main goal for Wednesday is to get Miss Karter to eat! I am very thankful that she is able to suck and swallow the milk now if we could just get her hungry! We are taking everything day by day and looks like we are at the point where all we can do is pray and wait and see.
Jeremy and I are still doing ok and hanging in there. It has been a roller coaster of emotions since she was born. Jeremy has defiantly been the strong one and has held it together for me when I just could not. The tears I cry are full of mixed emotions, I am excited and sad. Excited for all of the progress our baby girl has made but at the same time I have become torn by not being with Addison. Who knew that I would miss hearing Dora the Explorer in the background or the really stinky diapers? Thankfully she will be coming down for the weekend! Other things that have been hard are just not being able to go pick up Karter when I want to, while I am thankful that I at least get to hold her some it is just not the same. I never imagined not being able to hold my child or not being able to be with her for those precious first days. We still can not hold her hand or look at her toes because of all of the machines so all of that is tough. I did get to change her diaper today!!! I guess what I am trying to say is that I miss all of the little things that we do as mothers. My motherly instincts are there and it just kills me that I am not able to provide for her like I think I should be doing right now. On another note, Jeremy finally got to hold her today for a lengthy amount of time, I wish everyone could have seen the way he was beaming ear to ear! He is defiantly a proud daddy (as if you already did not know)! I just pray that I too can become as strong as he has been!
Well I think I have over done it for now...thank you for all of your support and prayers. Please keep the prayers coming because I know through prayer we can get Karter home! Our goal for the next week is to get to the recovery floor, floor 8! So please pray for floor 8!!! Also while in your prayers please also pray for all of Karter's new friends in the cardiac ICU! There are a lot of babies up there that still need prayer and healing. We have meet and will continue to meet some incredible people up here.
Thank you all!
P.S. We love you Miss Addison Grace, you are still our sweet angel too!
Monday, April 12, 2010
Baby Karter's Journey
Okay so I thought that this might be easier for everyone to follow. Karter was born yesterday at 12:19 pm. She was 19 in and weighed 5lbs 9oz. We were so excited to see that precious baby girl! Jeremy and I were both beaming from ear to ear upon her arrival. However, soon after coming out they took her to the NICU for what we thought was precauationary measures. We later soon learned that our journey with Karter has just begun. The doctors came in about 45 minutes after her birth to inform us that they thought there were some complications. Our whole world was rocked with this information. There were no indications of anything being wrong in her ultrasounds or in any of our examinations. Throughout the day we received more and more devestating news, it seems that everything they kept warning us about that could go wrong...did. Eventually we learned that our sweet angel may have downs syndrome, which to us is not a curse or anything that we could not handle, but rather a blessing. God has chosen us to be parents to this wonderful beautiful baby girl! The complication that was devasting to us was that she is faced with an undeveloped heart. Not only is her heart partially undeveloped but she also has an AV valve that is not properly working or formed. Due to this we were immediatly set up to be sent to Children's in Dallas. Jeremy was allowed to be air flighted with our angel to Dallas, and the doctors did discharge me so that we could be with her. My grandparents drove me down while daddy and Karter loaded up and flew in here to Dallas. Upon arrival they were able to get her stable and set up for the night. The nurse on charge for the night made us feel right at home and told us everything that we needed to know for today. They set her up for x-rays and an echo scan for this morning. Upon taking these scans they would let us know about her AV Valve.
SCAN RESULTS: Karter's heart did not fully form in the womb. The walls seperating the four chambers are not completely formed. This complication can be fixed with surgury. The next issue is that her Pulmanry Autury valve is not seperating the blood like it should to the correct areas of the body, meaning that she is not getting her oxygen in the lungs properly. This is the key concern and the harder of the two to fix. They put her on a heart medicine that allowed this valve to act like it was still in the womb so that she could keep her oxygen saturation levels up. Once she was stable enough this afternoon they began to pull her off of this medicine allowing the valve to close for now. If she can keep her oxygen and vitals up, and if the valve completely closes over the next four days then they believe that she will be able to go into the recovery area of the hospital and learn to feed. If she feeds good then she will be able to come home to Tyler until she is strong enough to endure this surgury. Option 2 if she is not able to come off of the medicine or if the valve does not close then they will go in and put in a stint in the valve. Once the stint is in she will then have to recover from that surgury. From there she can go to the recovery part of the hopspital and be discharged in a few weeks. Then we would wait for her to get strong enough and come back for the big surgury in a few months.
All in all we are playing the waiting game and will not know any real answers for four possibly five days. The two things we do know for now are that she will have to have surgury to fix both the chambers and the valve and that she will have to continously follow up with a cardiologist for her heart.
Thank you all so much for your thoughts and prayers!!! They are truly appreciated and have helped us get through one of the most difficult days in our life. We know that this will be a long journey but we are glad that we have friends like you all to help us through it! We will update the blog with any news that we receive and just ask that you continue to pray.
SCAN RESULTS: Karter's heart did not fully form in the womb. The walls seperating the four chambers are not completely formed. This complication can be fixed with surgury. The next issue is that her Pulmanry Autury valve is not seperating the blood like it should to the correct areas of the body, meaning that she is not getting her oxygen in the lungs properly. This is the key concern and the harder of the two to fix. They put her on a heart medicine that allowed this valve to act like it was still in the womb so that she could keep her oxygen saturation levels up. Once she was stable enough this afternoon they began to pull her off of this medicine allowing the valve to close for now. If she can keep her oxygen and vitals up, and if the valve completely closes over the next four days then they believe that she will be able to go into the recovery area of the hospital and learn to feed. If she feeds good then she will be able to come home to Tyler until she is strong enough to endure this surgury. Option 2 if she is not able to come off of the medicine or if the valve does not close then they will go in and put in a stint in the valve. Once the stint is in she will then have to recover from that surgury. From there she can go to the recovery part of the hopspital and be discharged in a few weeks. Then we would wait for her to get strong enough and come back for the big surgury in a few months.
All in all we are playing the waiting game and will not know any real answers for four possibly five days. The two things we do know for now are that she will have to have surgury to fix both the chambers and the valve and that she will have to continously follow up with a cardiologist for her heart.
Thank you all so much for your thoughts and prayers!!! They are truly appreciated and have helped us get through one of the most difficult days in our life. We know that this will be a long journey but we are glad that we have friends like you all to help us through it! We will update the blog with any news that we receive and just ask that you continue to pray.
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